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Parkinson's disease is also called primary parkinsonism for which no cause has yet been found.     Learn more...
 
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Reaching the rural areas of Pakistan with specialised care


Aziz Husain, member of The Pakistan Parkinson’s Society, explains how the organisation are able to offer free membership – and discusses the difficulties in supporting more rural areas of the country


The Pakistan Parkinson’s Society was founded by Haroon Basheer in 2008. Haroon was the former country general manager of Citibank and American Express and had a busy social life before he was diagnosed with Parkinson’s in 2005. A few years after his diagnosis he founded the Pakistan Parkinson’s Society to assist people with Parkinson’s, and change the perception of Parkinson’s as a life-ending illness. Unfortunately, Harooon passed away in January 2018.

At the Pakistan Parkinson’s Society, we aim to help those living with Parkinson’s, as well educate their caregivers and families about the disease. This is done via organising support groups, talks and annual Unity Walks. Our most recent Unity Walk was in March 2018 (all images in this feature are from the event).

One of our biggest successes has been creating awareness of the disease in the country to ensure timely diagnosis and improving the quality of life of our patients – we do this by sharing knowledge and support to both people with Parkinson’s, their family and carers.

Due to the lack of resources, we have not been able to meet all our objectives for the country. However, we are actively looking at new ways to increase the number of specialised professionals and carers in more rural parts of Pakistan.

A free-for-all membership

Initially, we charged an annual membership fee but owing to insufficient response, we abolished this charge. Anyone can now join our society at no cost and attend our events, seminars and group meetings.

We host regular meetings on the first Thursday of each month and have a variety of speakers who make presentations to raise awareness, increase knowledge and provide support for the Parkinson’s community. We also hold support group meetings in association with the Aga Khan University Hospital (AKUH), Karachi, Pakistan.

In addition, we also host seminars and talks on World Parkinson’s Day and arrange an annual partnership walk at the AKUH in Karachi. The aim of the walk is to encourage individuals to interact with the Parkinson’s community in Pakistan.


The Pakistan Parkinson’s Society talk, March 2018


Walking canes for people with Parkinson’s

One initiative our society is involved in is the distribution of free walking canes among Parkinson’s patients to prevent falls. The distribution was carried out by the Neurology Department of Jinnah Civil Hospital – who also offer free medical care for poorer patients.

Despite these positives, very little support for treatment is available in Pakistan. Public hospitals are ill-equipped with regards to both their skillsets and infrastructure, which limits the access of quality care for patients in rural areas.

Spreading care in rural areas

We are passionate about supporting rural areas of Pakistan by providing free care and translated publications, however we are sometimes limited by our lack of financial resources and staff.

To support those living in more rural areas we have translated many of our publications into Urdu. We also recently published ‘Parkinson’s Disease: Q&A’, ‘My life My PD booklet of GSK’ and ‘Exercise for the Parkinson’s Patients’ in addition to our periodic newsletter.

There is an acute shortage of qualified and experienced neurologists in Pakistan. The neurologists in the country are mostly concentrated in the urban areas, therefore making it very difficult for people with Parkinson’s symptoms in the rural areas to contact specialists and get timely help.

To combat this problem we aim to assist medical students who are interested in studying neurology. There are more than half a million people in Pakistan with Parkinson’s and they have limited access to qualified neurologists and medication.

They usually end up going to general practitioners or family doctors with limited knowledge of the early symptoms of the disease.


The Pakistan Parkinson’s Society event, March 2018


National guidelines for Parkinson’s diagnosis

The Pakistan Society of Neurology, who assist our society, has published the “National Guidelines for Diagnosis and Management of Parkinson’s Disease in Pakistan” to help GPs detect and provide support for Parkinson’s. The principal author of the guideline is Dr Nadir Ali Syed, a leading neurologist in Pakistan who is also the vice chairman of the board of the Pakistan Parkinson’s Society.

The biggest success of the Pakistan Parkinson’s Society has been creating awareness in the country to ensure timely diagnosis and medical care. Our focus has also been to provide support regardless of the individual’s financial situation.

The society would be grateful to receive any support or contributions from any individual or organisation who are able to help us assist the Parkinson’s community in Pakistan.


The Pakistan Parkinson’s Society event, March 2018


#Unite For Parkinsons

Message Received from European Parkinson’s Disease Association (EPDA)

#UniteForParkinsons is a global campaign that aims to raise awareness of Parkinson’s and to grow an active global Parkinson’s community. Last year, people from 90 countries used the #UniteForParkinsons hashtag; in 2018, we want to make an even bigger noise.

We are now writing to ask you to help us on 11 April 2018 – World Parkinson's Day – to show the world what living with Parkinson's truly means: this year, we want to reach the broader public. And to do that we want to focus on sharing simple videos and film footage that shows the individual challenges people with Parkinson’s have to face in their daily lives.

We hope therefore that you and members of the Pakistan Parkinson's Society will be able to take part in the campaign by telling your own stories on video.

What we are asking campaign supporters to do is very simple:

  • Record a short video using your smartphone, camera or any device.
  • Keep it short and simple, and make sure your audio is clear.
  • Tell your own story! Show us your world. People need to hear your voice, appreciate your challenges and feel your successes. They need to know how Parkinson's affects your life today. Tell us: what's the most important thing to you right now?
  • Be honest. Be brave. Be real.
  • Please be aware that your video does not need to be in English – it can be in any language.
  • You can find some simple video guidelines here, or attached.
  • Once your video is ready, share it – but make sure you use the #UniteForParkinsons hashtag! Post it on Facebook, upload it on YouTube, share it on Twitter. Embed it into your personal website or blog, if you have one. Get it out there, so as many people as possible can watch it and be inspired to do the same as you.
  • But above all: please remember to share your video again – using the #UniteForParkinsons hashtag – on World Parkinson’s Day, 11 April 2018. That is the big day where our united voice will count the most. All the thousands of videos will then appear together on the campaign website in a ‘virtual wall’.

We have also put together a campaign toolkit, available in seven languages (English, Dutch, French, German, Italian, Spanish and Welsh), that clearly explains what the #UniteForParkinsons campaign is, and what we are asking supporters to do. The toolkit is available for download at https://uniteforparkinsons.org/downloads/.

Since the Pakistan Parkinson's Society is a well-known and influential voice in the Parkinson’s community, we would be extremely grateful if you could spread the word about this campaign through among your contacts network in Pakistan, and help us make #UniteForParkinsons a truly global campaign.

Furthermore, if you could provide us with contacts of Parkinson’s organisations, patients associations and stakeholders in your area that could be willing to support the #UniteForParkinsons campaign, we would be absolutely delighted.

We know we are asking a lot but, as we hope you will understand, we are really keen to raise unprecedented awareness about Parkinson’s on 11 April, and we believe #UniteForParkinsons is a great way to do that.

Thank you very much in advance for your help! If you need more information about this campaign, please do not hesitate to contact us at [email protected] or visit uniteforparkinsons.org.

Kindest regards,
Francesco De Renzis
Email: [email protected]


Parkinson’s Unity Walk 2018

Pakistan Parkinson’s Society (PPS) and AKUH organized Parkinson’s Unity Walk & Mind & Brain Health Program on Sunday 11th March 2018 at the Aga Khan University Hospital Sports & Rehabilitation Center (SRC), Karachi.

The Walk timing was from 3.30 pm to 7.00 pm. The participants got themselves registered at the entry gate of SRC and were given T-Shirt and Caps. Around 350 participants along with their care givers took part in the Unity Walk. The Founder Director of PPS Mr. Irshad Jan welcomed the participants to the Parkinson’s Unity Walk.

The participants gathered in the Garden of SRC as AKUH had also organized free examination of the Parkinson’s Patients and other Neuro disorder diseases for Patients. Doctors were present to examine them in turns.

As the PPS Founder / Chairman Mr. Haroon Basheer had passed away on 25th January 2018, this was the first big event which was held in his absence. The AKUH paid tribute to Mr. & Mrs. Haroon Basheer for their contribution towards the cause of Parkinson’s disease and gave Memorial Shield to their eldest son Mr. Rafi Basheer also Founder Director of the PPS. Mr. Irshad Jan (Founder Director) paid rich tributes to Mr. & Mrs. Haroon Basheer for their commitment to Cultivate Hope amongst the people afflicted with the Parkinson’s disease.

The Parkinson’s Unity Walk started at 5.00 pm. The newly elected PPS Chairman Dr. Nadir Ali Syed led the Parkinson’s Unity Walk. The participants were holding banners and play cards in their hands and walked in the jogging track area around the cricket ground of AKUH Sports & Rehabilitation Center. After the completion of the Walk the participants were given Tea and Samosas for refreshment.

The Parkinson’s Unity Walk 2018 ended around 6.45 pm in the evening.











Support Group

Support Group meeting organized by Pakistan Parkinson’s Society & AKUH will be held on Thursday 1st March 2018 at the AKUH Sports & Rehab Center, Karachi. Time: 12.00 pm to 01.30 pm. Guest speaker: Dr. Wasay (Neurologist AKUH). Topic: “Behavioral issues in Parkinson’s Disease – An approach to its Understanding & Management”. Admission is free. PPS SMS: 03000-210997, AKUH SRC: 021-34861662

Topic: “Behavioral issues in Parkinson’s Disease – An approach to its Understanding & Management”
Speaker: Dr. Wasay (Neurologist AKUH)
Date: Thursday 1st March 2018
Time: 12.00 pm to 1.30 pm
Venue: AKUH Sports & Rehab Center Karachi.

Admission is free!
For details contact:
PPS SMS: 03000-210997
AKUH SRC: 021-34861662


Support Group

On Thursday 15th February 2018, Parkinson’s Support Group meeting was jointly organized by Pakistan Parkinson’s Society (PPS) & AKUH. The Speaker was Dr. A. Q. Rana, one of the World’s renowned Neurologists from Toronto, Canada addressed the session. The topic was “Non-Motor Symptoms of Parkinson’s”.

The opening remarks were given by Mr. Irshad Jan (Founder Director PPS) and introduced Dr. A. Q. Rana to the Patients & caregivers and asked the attendees to offered prayers for the departed souls of Mr. Haroon Basheer (Founder / Chairman PPS) and Mrs. Asima Haroon (Founder / Director PPS). It was a full house session. The meeting was well received by Parkinson’s Patients and their caregivers. About 40 patients and their caregivers attended this session. The closing remarks were given by Mr. Aziz Husain (Advisor PPS) and also confirmed that next Support Group Meeting will be held on Thursday 1st March 2018.

Date: Thursday 1st March 2018


Dr. A. Q. Rana addressing the session



Patients & Caregivers at the session



Dr. A. Q. Rana addressing the session



Q & A Session



Mr. Irshad Jan (Founder Director PPS) giving the Momentous to Dr. A. Q. Rana


Condolences of Dr. Rana on Passing of Haroon Basheer in Pakistan


Sadly Announce

Pakistan Parkinson’s Society (PPS) sadly announces that the Founder Chairman of the Society Mr. Haroon Basheer has passed away on Thursday 25th January 2018, Inna Lillah-e-Wa Inna Elehe Rajiyoon. May his soul rest in peace and may Allah grant him highest the place in Jinnat. Aameen


Invitation / Program

We are pleased to invite you to a seminar covering the following topic unveiling the mystery of Deep Brain Surgery (DBS) as a treatment option now available to the Patients of Parkinson’s in Pakistan. The first few procedures done have been successfully conducted in General Hospital Lahore. The facility is likely to be introduced in Karachi shortly.

Topic: “DBS procedure & indication”
Speaker: Dr. Dureshawar Kanwar (AKUH Faculty)
Date: Thursday 7th September 2017
Time: 12.00 pm to 1.30 pm
Venue: AKUH Sports & Rehab Center Karachi.

Admission is free!
For details contact:
PPS: 0300-8220196 AKUH: 021-34861662




Support Group

Support Group meeting was jointly organized by Pakistan Parkinson’s Society (PPS) and AKUH on Thursday 4th May 2017 at the AKUH Sports & Rehab Center (SRC). Prof Amanullah Memon a consultant Urologist & Professor of Surgery at AKUH spoke on the ‘Management of Urinary & related problems with Parkinson’s Patients’. Around 30 participants / caregivers attended the session. Prof Amanullah explained each & every detail related to Urinary problems with Parkinson’s patients in a very simple way which was well received by the participants and appreciated the efforts of PPS in ‘Cultivating Hope’ amongst the people afflicted with the Disease.

Date: Thursday 4th May 2017
Venue: AKUH


Prof Amanullah Memon discussing the topic with the patients & caregivers



Patients & caregivers at the Support Group Meeting



PPS Chairman Haroon Basheer giving memento to Prof Amanullah Memon


Lets Unote

Come join the Parkinson’s Unity Walk with your family and friends at the Aga Khan Sports & Rehabilitation Center, Karachi.

Date: Sunday 5th March 2017
Time: 4.00 pm to 6.00 pm
Venue: Aga Khan Sports & Rehabilitation Center, Karachi.

Admission is free!
In collaboration with AKUH
For details:
Visit us: www.parkinsons.org.pk
Contact us:[email protected]
SMS: 03000-210997


Invitation to Parkinson's Support Group Meeting

You are cordially invited to the Parkinson’s Support Group meeting organized by Pakistan Parkinson’s Society (PPS) & AKUH.

Topic: “How has Management of Parkinson’s Disease Changed over the years” – A Neurologist perspective
Speaker: Dr. Nadir Ali Syed (Consultant Neurologist)
Date: Thursday 5th January 2017
Time: 12.00 pm to 1.30 pm
Venue: AKUH Sports and Rehab Centre, Karachi

Admission is free!
For details contact:
PPS SMS & Tel: 03000-210997 AKUH: 021-34861662


Invitation to Parkinson's Support Group Meeting

You are cordially invited to the Parkinson’s Support Group meeting organized by Pakistan Parkinson’s Society & AKUH.

Topic: “Falls in Patients with Parkinson’s Disease – Risk Factors & Preventive Steps”
Speaker: Dr. Aziz Sonawalla (Neurologist Faculty AKUH)
Date: Thursday, 1 December 2016
Time: 12.00 pm to 1.30 pm
Venue: AKUH Sports and Rehab Center, Karachi.

Admission is free!
For details contact:
PPS SMS & Tel: 03000-210997 AKUH: 021-34861662



Dr. Naim Siddiqui (Consultant Psychiatrist Coordinator AKUH / SIUT) at the Parkinson's Support Group Meeting held on 06-10-2016 at the AKUH Sports & Rehab Center Karachi.



Patients & Caregiver at the Parkinson's Support Group Meeting held on 06-10-2016 at the AKUH Sports & Rehab Center Karachi.



A slide from Dr. Naim Siddiqui's topic.


 

 


 

 


Parkinson’s Support Group meeting on Thursday, 6th August 2015

Organized by Pakistan Parkinson’s Society & AKUH, Parkinson’s Support Group meeting will be held on Thursday, 6th August 2015 at the AKUH Sports and Rehab Centre, Karachi.

Speaker : Dr. Mariam Syeda (Faculty AKUH)

Topic: Speech Problems in PD Patients

Time: 12.00 pm to 1.30 pm

Admission is free

Contact:

PPS SMS & Tel: 03000-210997

AKUH: 021-34861662


 

 


 

 


 

 


 

 


Parkinson’s disease Support Groups

Some people may have problems coping with Parkinson’s disease. It may be hard for them to ask their doctor questions or talk about their problems with their family or friends. A support group may be just the right answer. Many patients have gained encouragement from meeting with others who have Parkinson’s disease. The meetings provide an opportunity to discuss experiences and feelings and to share solutions to common problems.

Pakistan Parkinson’s Society, (PPS) recognizing this need besides organizing ‘open days’ / seminars all aimed at making life easier for Parkinson’s patients and making them understand and manage the disease..Support Group meets every first Thursday of the month at the AKUH Sports and Rehabilitation Centre from 12.00-1.30 PM. Admission is free. On an average around 30-35 mostly PD patients attend. The meeting is addressed by AKUH faculty and each month a condition that bothers PD Patients is discussed in an interactive session.

PPS has held over 34 Support Group sessions and have discussed topics nd like; Voice Therapy, Dietary, Exercise, Neurology, Depression, Tip for living with Parkinson’s, Speech, Oral Hygiene, Steps to Wellness to name a few.

Below are some glimpses of the Support Group held on 7th August 2014. The topic under discussion was, ‘The 12 Steps to Wellness’, and the meeting was coordinated by Mr. Mohabbat Ali (AKUH Faculty) and Haroon Basheer (Founder PPS). Participants were guided in how to make Wellness notes and maintain a diary which will be discussed at the next meeting scheduled on Thursday 4th September, 2014 at the AKUH Rehab Center Karachi. Patients of PD and care givers are encouraged to attend. Admission is free.

Contact: [email protected]


World Parkinson’s Day 2015



Aga Khan University Hospital



Aga Khan University Hospital



Aga Khan University Hospital



Chairman at LSVT Session



Mohabbat Ali



Session Group



Slim Majeed Ullah



Lahore Seminar on Parkinson’s


Notes on PPS Seminar:

The Seminar was held through the joint collaboration of the Jung Group and Pakistan Parkinson’s Society (PPS) at Pearl Continental Hotel for PD patients on August 13, 2013 at 10AM.

PPS DIRECTORS PRESENT:

Mr. Haroon Basheer (Chairman)

Mr. M. Irshad Jan (Director)

Mrs. Asima Haroon (Director)

Seminar’s Agenda:

1. Opening remarks / Overview by PPS Chairman, Mr. Haroon Basheer.

2. What is Parkinson’s, managing motor / non motor challenges. Speaker: Dr. Ather Javed.

3. Preparation for visit to Doctor, You are your best Doctor. Speaker: Dr. Naeem Qasuri.

4. (1) How are PD Patients managed in USA.
    (2) Surgical options, DBS Procedures and experience / how patient is selected.
    Guest Speaker: Dr. Saad Siddiqui

5. Closing Remarks. Speaker: Dr. Nasrullah.

6. Hi-Tea.

The Seminar:
  • The Seminar opened with the name of Allah.

  • The Chairman welcomed the participants to the Seminar and thanked them for giving their time which will benefit Parkinson’s patients and their caregivers. He also spoke about the completion of 5 years of Pakistan Parkinson’s Society and its achievements in cultivating hope to the PD patients.

  • Dr. Ather Jawed a Neurologist spoke about the motor and non-motor periods in Parkinson’s patients and how to manage it.

  • Dr. Naeem Qasuri also a Neurologist spoke at which time a patient with Parkinson’s symptoms should visit a Neurologist as the patient himself is a better judge of his condition.

  • The guest speaker Dr. Saad Siddiqui, a Neurologist from US who was on a private visit to Lahore and on request of the Society he spoke on how the patients with Parkinson’s in US are managed. He also spoke about the surgical options and about DBS Procedures his experiences and how a patient is selected for surgery.

  • Seminar’s closing remarks were given by Dr. Nasrullah.

  • The closing of seminar was followed by Hi-Tea.

  • The seminar was over-all a success as PD patients and their care givers were there, around 175 people participated in it.

Date: 13/08/2013

Chairman


A public awareness and a scientific seminar was arranged in Lahore with the collaboration of Jinnah Hospital / Allama Iqbal Medical College (AIMC) on 12/12/2012. The seminar which was held at the AIMC auditorium and was attended by over 150 people mostly effected by Parkinson's disease Mr. Haroon Basheer Chairman PPS in his opening address talked about the lack of awareness in general public but also lack of knowledge among doctors on symptoms and management of the disease. He also went on to thank the principal of AIMC Mr. Shaukat Mahmood for his support and cooperation. In his closing remarks Dr. Mahmood whilst appreciative of the work been done by the Society he also promised to start a Neurology clinic in the Hospital."

The next seminar is planned in February (dates to be announced) in Faisalabad.

Summary of up coming events January to February 2013

1. Support Group at the AKUH Sports & Rehabilitation Centre on Thursday 7th February 2013. Speaker Dr. Sayda Mahvish Hussain will speak on "Oral Hygiene" for Parkinson's patients. (Support Group meeting is held on the first Thursday of each month same time same place)

2.Support group at South City Hospital auditorium on Saturday 23rd February 2013. Presentation on Occupational Therapy. (Support Group meeting is held on the last Saturday of each month, same time same place)

3. Public awareness seminar at Faisalabad on February 2013 (dates to be announced)


Events Parkinson’s support group South City Hospital Last Saturday of each month 12.00-13.00 hours 29 DEC 2012 ADMISSION FREE Pre Resgistration Mandatory PARKINSON'S SUPPORT GROUP AT AKUH SPORTS AND REHAB CENTRE Held first thursday of each month 12.00-1.30 PM ADMISSION FREE For more info: Contact us at; [email protected]


Pakistan Parkinson’s Society Support Group Meeting held on 04-10-12


Parkinson’s Support Group Meeting is held every first Thursday of the month at AKUH Sports & Rehabilitation Center. It is a collaborative effort between Pakistan Parkinson’s Society and AKUH.

The main topic for the October meeting was “Gait and Balance Management in Parkinson’s patients”. An interactive session and a detailed interactive presentation was made by Mr. Mohabbat Ali (Incharge Rehabilitation Center)

Almost every attendee asked questions and they themselves also exchanged information. These kinds of Support Group sessions are of great help for the PD patients.

The Pakistan Parkinson’s Society Chairman Mr. Haroon Basheer thanked Mohabbat Ali for efforts put in by him, and in a feedback letter sent to him, he commented;

“The feedback from the recently held support group was excellent and your presentation on ‘Gait and Balance management ‘ was well received. The highly interactive session helped clarify a lot of issues and again demonstrated your / AKUH commitment on being professional and patient focused”.

The Parkinson’s Support Group is a joint initiative of AKUH and Pakistan Parkinson’s Society. The support meets at the AKUH Sports and Rehabilitation center on first Thursday of each month, from 12 to 1.30pm. Details can be obtained from the following numbers: 0300-8967361, (SMS) 0302-8234328, AKUH: 021-34930051 Ext: 1662, Contact: [email protected]

Parkinsons Support Group


Jointly organized by the Pakistan Parkinson’s Society (PPS) and

Aga Khan University Hospital Karachi.

Date: Thursday 4 October 2012

Time: 12.00 - 13.30 pm

Admission is free

Venue: AKUH Sports and Rehabilitation Centre

Program:

Opening remarks / Wellness

Haroon Basheer (Chairman PPS)

Interactive Session on Gait & Fall Management in Parkinson’s

Mohabbat Ali (Incharge Advanced Rehabilitation Program)

Closing Remarks: M. Irshad Jan (Director PPS)

Contact: [email protected]

Telephone: 0300-8967361, (SMS) 0302-8234328, AKUH: 021-34930051 Ext: 1662

Support Group meets first Thursday of each month, same time, same place.

“Those who fight Parkinson’s with knowledge always find solutions”

Pakistan Parkinson's Society

Contact : [email protected]

Tel: 0300 8220 196

Parkinsons Support Group


Date: Thursday 5 July 2012

Time: 12.00- 13.30 pm

Admission is free

Venue: AKUH Sports and Rehab centre

Program:

Opening remarks Wellness / Speech impediments revisited

Non Motor symptoms awareness / management

Consultant / Neurologist AKUH

Haroon Basheer Chairman PPS

Dr Sarwar Jameel Siddiqui

Q & A

All Closing

Mohabbat Ali

Senior Advanced Re-hab

 

 

Parkinsons Support Group


On Thursday 3rd May 12 to 1.30 pm

Admission is free

At Aga Khan University sports and rehabilitation centre

Topics fo be covered

"Beyond Medicine"

video presentation by Dr.Parekh Joshi

On deep brain stimulation
Q & A Agha Khan Faculty

Video presentation on LSVT LOUD/ Big
Co ordinator Mohabbat Ali AKUH Faculty
Conducted by M. Irshad Jan director Pakistan Parkinson’s Society

 
 

Dear Friend,

Parkinson’s Unity Walk……. a Catalyst for Hope and Promise for the Parkinson’s Disease Community

Karachi– On Sunday February 12th the Parkinson’s disease community comes together to instill spirit and optimism in those affected by the disease at the Parkinson’s Unity Walk, a grass root event for people afflicted by the disease.

Organized by the Pakistan Parkinson’s Society in collaboration with Agha Khan Hospital people affected with the disease, caregivers, families and friends are expected to lend their feet by participating in a gentle one mile walk and community education day in Agha Khan Hospital Cricket Ground Sports and Rehab Centre, Karachi.

At the Walk, attendees will be able to mingle with Caregivers, Therapy specialists and take take away brochures about alternate therapies and information on local support groups. To receive more information on Parkinson’s disease please visit our website www.parkinsons.org.pk or visit the booth at site. Interested participants may register at walk site or online email [email protected] or by SMS to 0302 8234832

Registration is free and each registered walker will get a sports Cap Free

The program is as follows:

Date Sunday 12, 2012
Venue Cricket Ground Agha Khan Hospital, Sports and Rehab Centre
Time Registration 10.30 AM onwards
Walk starts 11.00 AM Welcome Registration is FREE. Refreshments are available Each registered walker gets a Sports cap. Free Hospital shuttle will be available for transportation from parking lot to walk site.

Pakistan Parkinson’s Society (www.parkinsons.org.pk) which was founded in 2008 with the objective of raising awareness and funds for PD patient centric support activity uniting the community under a common goal of winning the war against Parkinson’s disease. This event is in collaboration with The Agha Khan Hospital who are supportive of such community programs which include educational programs and Parkinson’s Support group activity. The walk provides an opportunity to help the Parkinson’s community to network and change the lives of people suffering from the disease. We look forward to your presence in support of the Parkinson’s community.

Join us. Make every step count

M. Irshad Jan

Director

 
Bharpoor Zindagi

Bharpoor Zindagi

Bharpoor Zindagi

1.The PPS Chairman Mr. Haroon Basheer called on the Director Ziauddin college of speech therapy Ms Amina Asif Siddiqui. It was agreed that PPS and ZCSLT will collaborate and provide support to each other .PPS will invite members from the college faculty to address its seminars and spread awareness of speech therapy treatments offered.

2.A memorandum of understanding was signed between the President of the Pakistan Neurological Society (PNS) and PPS .Both institutions agreed to support each other in activities related to create awareness about parkinson's disease amongst patients, caregivers and medical support staff.Dr. Prof.Shaukat Ali, Head of Neurology JPMC, and Mr. Haroon Basheer, Chairman Pakistan Parkinson'S Society in a joint statement stated that this will give further boost to achieving the societies' goals and objectives.

3.The "Bharpoor Zindagi" Seminar/support group, scheduled at the Najamuddin Auditorium at the Jinnah Hospital on the 28th of July 2010, was postponed, due to the unforseen turbulent conditions in Karachi. We will be rescheduling the event very soon. Please check this site for further information on the Seminar dates etc.

Agenda: Parkinson's diseaese management .....complementary therapy,balance between faculty ,senior neurologists and medical support profession.

Contact: [email protected]

SMS: 0300 8220196
           0302 8234328



04 August 2010
 

 
1 April 2010
 

 

New Booklet to be launched
on World Parkinson’s Day

New Broucher

Pakistan Parkinson’s Society in collaboration with
Glaxo SmithKline have launched a booklet titled
My Life, My PD for Parkinson's patients.
To order a copy write to us at [email protected] or SMS 0302 8234328

 

PARKINSON'S SEMINAR

Click here to view details
 

Energy Therapy - An Introduction

Click here to view details
 

 
Click here to view details
For information contact
[email protected]
Supported by: Glaxo SmithKline Pakistan Limited
 
 

 
Wellness Series...
The Pakistan Parkinson's Society (PPS) is starting the WELLness series project in an effort to explore and promote the therapeutic value of creativity/music and generating wellness in the treatment and management of Parkinson's.
 
Who should attend?
Primarily Parkinson's patients, their families and care givers. Medical practitioners, movement disorder support professionals will also find it useful as non traditional methods and practices will be introduced to create wellness in Persons with Parkinson's.
 
WELLness Series.... Support Group
Organized and Managed by:
 
Date   :    Saturday 1st August, 2009  
Venue   : Karachi South City Hospital Auditorium  
       
11:00 AM – 11:30 AM   : Opening Recitation of the Holy Quran  
       
    :  Opening remarks. Today’s Agenda. Mr. Haroon Basheer
    :  Ice-breaker
     
11:30 AM – 11:50 AM   : Music Therapy and the sounds of nature Mr. Haroon Basheer
     
    Tea Break  
     
12:00 Noon – 13:00 PM   : "Keep Moving" Video assisted exercise
program under supervision of Senior
Physiotherapist Dow
Dr. M Arif
     
13:00 PM – 13:10 PM   : Video, "Practical Tips for Daily living"
     
13:10 PM – 13:30 PM   : Q & A Doctors in attendance*
       
13:30   : Light refreshments  
 
Admission is free
Primarily meant for people with PD and their caregivers, doctors and other medical support personnel also welcome.
Space is limited so pre booking is recommended.
 
*Dr. Nadir Syed 
 Dr. Faisal Mamsa 
 Dr. M Arif 
 
Haroon Basheer 
 

 
 
Pakistan Parkinson's Society invites you to a PD Awareness Seminar organised to mark World Parkinson's Day in collaboration with AKUH.
 
 
Date : Saturday, April 11, 2009
Timing : 04:00pm to 06.00pm
Venue : Agha Khan University Auditorium
     
Faculty / program
 
Parkinson’s Disease: What everyone should know - Dr. Sarwar Siddiqui, Consultant Neurologist
     
Living with Parkinson’s Disease - Dr. Mughis Sheerani, Consultant Neurologist
     
New and emerging therapies for Parkinson’s Disease - Dr. Nadir Syed, Consultant Neurologist
     
Psychological Aspect of Parkinson’s Disease - Dr. Wahab Yousafzai, Consultant Psychiatrist
     
Speech Therapy for PD Patients - Ms. Fauzia Shah, Speech Therapist
     
Question and Answer Session
 

 
 

 
 
MIR RIAZ MAHMOOD
With deep regrets we share the news of the sad demise of our Founder Director & Vice Chairman. His contribution to the formation of the Pakistan Parkinson’s Society and active participation in its affairs will long be remembered.
 
We pray to Allah to give him a place in heaven and his family and loved ones the courage to bear this loss…
Ameen
(Ina lilalahey wa ina alhey rajeon)
**************************************

I hope you never fear those mountains in the distance,
Never settle for the path of least resistance,
Living might mean taking chances but they're worth taking,
Loving might be a mistake but its worth making,
Don't let some hell bent heart leave you bitter,
When you come close to selling out, reconsider,
Give the heavens above more than just a passing glance,
And when you get the choice to sit it out or dance.

I HOPE YOU DANCE....

Haroon Basheer
 

 
Organized by the:
Pakistan Parkinson's Society
 
Pakistan Parkinson' Society in collaboration with the Agha Khan University Hospital is holding a Parkinson's Management and Support Clinic as part of the ongoing Support Group activity for People with Parkinson's (PwP's) and their care givers.
 
Venue : Lecture Hall # 3 Agha Khan University Hospital Karachi
Date : Saturday, January 3rd, 2009
Timing : 10.30am to 1.00 pm
 
Multidisciplinary Sessions which will be handled by Specialists
  • Exercises for People with Parkinson's (PwP's)
  • Occupational Therapy. Help for People with Parkinson's
  • Step by step Speech Therapy, you have a voice
  • Healthy diet and nutrition tips for PwP's
 
Question & Answer session/ Wrap up comments by Dr. Nadir A Syed, Neurologist AKUH. Coordinator Mr. Haroon Basheer, Chairman, Pakistan Parkinson's Society
 
Admission is free, however space is limited so kindly confirm your intention to attend via email [email protected] or call/ SMS 0300-8220-196. Booklets on management of Parkinson's will be available for attendees with compliments of the Pakistan Parkinson's Society
 
GP's, medical students, nursing aides are also welcome to attend
 
 

 
Seminar on 'Mood Management' to be addressed by leading doctors
 
Date : 18th October 2008
Timing : 11:00-12:30 PM
Venue : Venue South City Hospital Auditorium (opposite Barbq Tonite)
 
Who should attend?
People with Parkinson's, their care givers and GP's seeking info on Parkinson’s disease management.
 
Register on [email protected] or sms/tel 0300 8220196
 
ADMISSION IS FREE
 
 

 
 
Support Group Session focused on Speech Therapy
On 9th August at AKUH Lecture Hall # 3
 
Time: 11:00 to 12:30 PM
 
(Admission Free)
 

 
 
  Aga Khan University  
     
  in collaboration with the  
     
  Pakistan Parkinson's Society  
 
are pleased to invite you to
A Support Group Programme for People with Parkinson's (PWP) and their care givers on the theme:
 
 
 
Objectives:
  • To share individual experiences and coping strategies that work.
  • To identify perceived gaps in Parkinson's Management.
  • To identify needs of 'People with Parkinson's and hold tailor made PD management workshops.
 
 
Day : Saturday, May 31, 2008
Time : 11:00 AM – 12:30 PM
Venue : Lecture Hall # 2, Aga Khan University Hospital
 
 
Programme:
 
11:00 AM – 11:10 AM : Objectives of the Support Group.
     
11:10 AM– 11:20 AM : Introductions
     
11:20 AM– 11:45 AM : Personal stories and issues. Coordinated by Haroon Basheer, Chairman PPS Pakistan Parkinson's Society.
     
11:45 AM – 12:25 PM : Presentation by Dr. Muhammad Arif Ali, Sr. Physical Therapist, Department of Physiotherapy on the importance of regular exercise for People with Parkinson's (PwP).
     
12:25 PM– 12:30 PM : Concluding remarks by Dr. Nadir Ali Syed, Associate Professor and Head, Section of Neurology, Department of Medicine, AKU.
 
 
All are cordially invited
Admission is free
 

 
 
Q & A session on World Parkinson’s Day celebrated on April 10th 2008.
 
Chairman PPS Mr. Haroon Basheer presenting the patient’s perspective.
 
The audience